About Us
Our Manifesto
SHRARE is not a conventional company.
It was built to confront one of the deepest failures of modern healthcare: the neglect of rare diseases.
For too long, rare diseases have been treated as peripheral — too fragmented, too complex, too small for the priorities of the system. We reject that logic entirely.
Rare is not small.
Rare is not secondary.
Rare is not expendable.
SHRARE begins with a conviction carried forward over time: that rare diseases deserved more attention, more rigor, and more action than they were given. What could once only be seen as vision can now be built with the tools, intelligence, and execution of a new era.
We believe technology should do more than produce information. It should turn complexity into movement. It should compress time, organize fragmented knowledge, and help move rare diseases closer to action.
But technology alone is not enough.
Speed without rigor is noise.
Ambition without discipline is theater.
Science without trust cannot serve patients.
That is why SHRARE is built on a simple standard: the mission must matter more than the founders, the work must matter more than the narrative, and patients must matter more than prestige.
We are not here to romanticize rarity.
We are here to confront neglect.
We are not here to produce attention.
We are here to produce progress.
Rare diseases have waited long enough.
End the neglect of rare diseases.
The 10 SHRARE Principles
Rare is not small.
Rarity does not reduce importance.
Neglect is unacceptable.
What has been overlooked must become a priority.
Patients before prestige.
Outcomes matter more than narratives.
Science before noise.
Credibility is non-negotiable.
Speed is a duty.
For rare-disease patients, delay is never neutral.
Trust is part of the product.
Without trust, innovation does not serve.
Build what can move.
Execution matters more than admiration.
Think globally from day one.
Rare diseases require a global response.
The mission matters more than the founders.
The cause must always be bigger than the people behind it.
End neglect.
Progress matters only if it changes what has been ignored.
People
The people behind SHRARE
SHRARE brings together scientists, engineers, strategists, and operators united by one conviction: rare diseases should no longer remain neglected.
The company reflects a continuity of thought carried forward over time. What one generation could recognize before the system was ready, another can now build with the tools, intelligence, and technical capabilities of a new era.
SHRARE stands at the meeting point between vision and execution — between deep scientific understanding, long-term conviction, and AI-native systems able to turn complexity into action.
Our team combines expertise across:
- AI and machine learning
- Drug development and clinical strategy
- Regulatory and evidence structuring
- Intellectual property and strategic partnering
- Product, systems, and execution design
We are not building around personalities.
We are building around a mission.
Rare diseases deserve more than awareness. They deserve action.
Careers
Careers at SHRARE
We are building a company dedicated to confronting the neglect of rare diseases through scientific rigor, AI-native systems, and disciplined execution.
We are looking for exceptional people who want to work on difficult, meaningful problems at the intersection of technology, science, and real-world impact.
AI / ML Engineers
Engineers with strong foundations in machine learning, data systems, LLM workflows, multi-agent architectures, and applied AI for complex, high-stakes environments.
- Machine Learning Engineer
- Applied AI Engineer
- AI Systems Engineer
- Data / Knowledge Systems Engineer
Scientific & Development Experts
Professionals with experience in drug development, translational medicine, clinical development, regulatory strategy, or scientific evaluation, ideally with exposure to rare diseases.
- Clinical Development Specialist
- Translational Science Expert
- Regulatory Strategy Lead
- Scientific Evaluation Manager
Product & Platform Builders
People who can help structure and scale the platform, workflows, and execution logic behind SHRARE.
- Product Manager
- Technical Program Manager
- Platform Operations Lead
- Workflow Design Specialist
What we look for
We are building for one of the most neglected areas in healthcare.
If that matters to you, we would like to hear from you.
Contact SHRARE
If you are a researcher, partner, candidate, or organization interested in SHRARE, we would be glad to hear from you.
Please use the form below to get in touch. We review all serious inquiries carefully and aim to respond as appropriately as possible.
Rare diseases have waited long enough.
Let's build what moves them forward.