About Us
SHRARE isn't just a platform — it's a movement.
A purpose-built, AI-native, community-powered engine to reshape how life-saving therapies are discovered, shared, and delivered.
We are a Public Benefit Corporation born from lived experience, scientific commitment, and one simple belief:
Rare should not mean invisible.
We exist to unlock the full potential of clinical-stage research — wherever it's hiding — and connect it to those who can turn it into real-world cures. Researchers. Patients. Pharma. Families. Foundations. Governments. Together, not apart.
We don't own ideas. We liberate them — for science, for patients, for the future.
Vision
A world where no good research is left behind — and every rare disease has a fighting chance.
Mission
To build a radically open, AI-powered, human-centered platform that transforms overlooked research into breakthrough therapies — through smart collaboration, shared value, and global community.
Our Purpose
Right now, thousands of promising therapies are stuck — in labs, hospitals, forgotten folders. They lack funding, visibility, and direction. But someone, somewhere, is waiting for them.
That's why SHRARE exists.
We connect dots that were never meant to stay disconnected: Researchers and pharma. Data and insight. Science and society.
Because RARE isn't just a disease category — it's a call to action. To care. To contribute. To collaborate.
Why We're a Public Benefit Corporation
We don't believe in business as usual. We believe in business as a force for global health equity.
In the USA we are a Public Benefit Corporation, thus we are legally committed to placing impact before profit, and purpose before politics.
Our mission is to support medical innovation that serves real human need — not hype, but hope. To help the rare become real. To make the invisible visible. And to do it openly, ethically, and together.
Our People
We are scientists and strategists. Data scientists and designers.
Engineers, pharmacists, entrepreneurs, and dreamers.
Founders with a track record. Innovators with vision. Realists who know how to get things done.
Together, we bring over 300 years of combined experience across science, business, health innovation, and technology. We've launched therapies, built companies, scaled platforms, and shaped ecosystems.
Many of us are proud alumni of ETH Zurich — a birthplace of world-class scientific thinking and breakthrough engineering.
We are united by purpose, not by accident. Because we know: together, we can change how health innovation works. Together, we can build a system where rare doesn't mean forgotten — but empowered.
Our Areas of Expertise
Drug Development & Clinical Strategy
AI & Platform Engineering
Scientific Validation
Intellectual Property
Regulatory & Market Access
Financial Modeling & Pharma Deals
Human-Centered Design & Digital Experience
Community Building & Ecosystem Strategy
One team. One mission. One belief: RARE is not rare — not when we work together.
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Get in Touch
Have questions about our mission or want to learn more? We'd love to hear from you.